Transforming access to care for serious mental disorders in slums (the TRANSFORM Project): rationale, design and protocol

Swaran P. Singh; Sagar Jilka; Jibril Abdulmalik; Georgios Bouliotis; Rakesh Chadda; Olayinka Egbokhare; Rumana Huque; Gillian Lewando Hundt; Srividya Iyer; Obafemi Jegede; Neeru Khera; Richard Lilford; Jason Madan; Akinyinka Omigbodun; Olayinka Omigbodun; Tasneem Raja; Ursula M. Read; Bulbul Ashraf Siddiqi; Mamta Sood; Tanjir Rashid Soron; Helal Uddin Ahmed; the TRANSFORM consortium

doi:10.1192/bjo.2022.584

Transforming access to care for serious mental disorders in slums (the TRANSFORM Project): rationale, design and protocol

Swaran P. Singh, Sagar Jilka, Jibril Abdulmalik, Georgios Bouliotis, Rakesh Chadda, Olayinka Egbokhare, Rumana Huque, Gillian Lewando Hundt, Srividya Iyer, Obafemi Jegede, Neeru Khera, Richard Lilford, Jason Madan, Akinyinka Omigbodun, Olayinka Omigbodun, Tasneem Raja, Ursula M. Read, Bulbul Ashraf Siddiqi, Mamta Sood, Tanjir Rashid SoronHelal Uddin Ahmed, the TRANSFORM consortium

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Abstract

This paper introduces the TRANSFORM project, which aims to improve access to mental health services for people with seriou and enduring mental disorders (SMDs – psychotic disorders an severe mood disorders, often with co-occurring substance mis use) living in urban slums in Dhaka (Bangladesh) and Ibadan (Nigeria). People living in slum communities have high rates of SMDs, limited access to mental health services and conditions o chronic hardship. Help is commonly sought from faith-based and traditional healers, but people with SMDs require medical treatment, support and follow-up. This multicentre, internation mental health mixed-methods research project will (a) conduc community-based ethnographic assessment using participator methods to explore community understandings of SMDs and help-seeking; (b) explore the role of traditional and faith-based healing for SMDs, from the perspectives of people with SMDs, caregivers, community members, healers, community health workers (CHWs) and health professionals; (c) co-design, with CHWs and healers, training packages for screening, early detection and referral to mental health services; and (d) implement and evaluate the training packages for clinical and cost-effectiveness in improving access to treatment for those with SMDs. TRANSFORM will develop and test a sustainable intervention that can be integrated into existing clinical care and inform priorities for healthcare providers and policy makers.

Original language	English
Article number	e185
Number of pages	9
Journal	BJPsych Open
Volume	8
Issue number	6
Early online date	13 Oct 2022
DOIs	https://doi.org/10.1192/bjo.2022.584
Publication status	Published - Nov 2022

Bibliographical note

© The Author(s), 2022. Published by Cambridge University Press
on behalf of the Royal College of Psychiatrists. This is an Open
Access article, distributed under the terms of the Creative
Commons Attribution licence (http://creativecommons.org/
licenses/by/4.0/), which permits unrestricted re-use, distribution
and reproduction, provided the original article is properly cited.

Funder

This study/project is funded by the UK's National Institute for Health and Care Research (NIHR) (Award number: NIHR200846). S.P.S. is supported by the NIHR Applied Research Collaboration (ARC) West Midlands. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.

Publisher Copyright:
© The Author(s), 2022.

Keywords

collaboration
faith and traditional healers
low-and-middle-income countries
Serious mental illness

ASJC Scopus subject areas

Psychiatry and Mental health

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1192/bjo.2022.584Licence: CC BY

PublishedFinal published version, 866 KBLicence: CC BY

Cite this

Singh, S. P., Jilka, S., Abdulmalik, J., Bouliotis, G., Chadda, R., Egbokhare, O., Huque, R., Hundt, G. L., Iyer, S., Jegede, O., Khera, N., Lilford, R., Madan, J., Omigbodun, A., Omigbodun, O., Raja, T., Read, U. M., Siddiqi, B. A., Sood, M., ... the TRANSFORM consortium (2022). Transforming access to care for serious mental disorders in slums (the TRANSFORM Project): rationale, design and protocol. BJPsych Open, 8(6), Article e185. https://doi.org/10.1192/bjo.2022.584

Singh, SP, Jilka, S, Abdulmalik, J, Bouliotis, G, Chadda, R, Egbokhare, O, Huque, R, Hundt, GL, Iyer, S, Jegede, O, Khera, N, Lilford, R, Madan, J, Omigbodun, A, Omigbodun, O, Raja, T, Read, UM, Siddiqi, BA, Sood, M, Soron, TR, Ahmed, HU & the TRANSFORM consortium 2022, 'Transforming access to care for serious mental disorders in slums (the TRANSFORM Project): rationale, design and protocol', BJPsych Open, vol. 8, no. 6, e185. https://doi.org/10.1192/bjo.2022.584

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abstract = "This paper introduces the TRANSFORM project, which aims to improve access to mental health services for people with seriou and enduring mental disorders (SMDs – psychotic disorders an severe mood disorders, often with co-occurring substance mis use) living in urban slums in Dhaka (Bangladesh) and Ibadan (Nigeria). People living in slum communities have high rates of SMDs, limited access to mental health services and conditions o chronic hardship. Help is commonly sought from faith-based and traditional healers, but people with SMDs require medical treatment, support and follow-up. This multicentre, internation mental health mixed-methods research project will (a) conduc community-based ethnographic assessment using participator methods to explore community understandings of SMDs and help-seeking; (b) explore the role of traditional and faith-based healing for SMDs, from the perspectives of people with SMDs, caregivers, community members, healers, community health workers (CHWs) and health professionals; (c) co-design, with CHWs and healers, training packages for screening, early detection and referral to mental health services; and (d) implement and evaluate the training packages for clinical and cost-effectiveness in improving access to treatment for those with SMDs. TRANSFORM will develop and test a sustainable intervention that can be integrated into existing clinical care and inform priorities for healthcare providers and policy makers.",

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Transforming access to care for serious mental disorders in slums (the TRANSFORM Project): rationale, design and protocol

Abstract

Bibliographical note

Funder

Keywords

ASJC Scopus subject areas

UN SDGs

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