Stakeholder Requirements for an Ethical Framework to Sustain Multiple Research Projects in an Emerging Living Lab Involving Older Adults

Tiziana C. Callari; Louise Moody; Janet Saunders; Gillian Ward; Julie Woodley

doi:10.1177/1556264619873790

Stakeholder Requirements for an Ethical Framework to Sustain Multiple Research Projects in an Emerging Living Lab Involving Older Adults

Tiziana C. Callari
, Louise Moody
, Janet Saunders
, Gillian Ward
, Julie Woodley

University of the West of England

Research output: Contribution to journal › Article › peer-review

9 Citations (Scopus)

49 Downloads (Pure)

Abstract

Living Lab (LL) research should follow clear ethical guidelines and principles. While these exist in specific disciplinary contexts, there is a lack of tailored and specific ethical guidelines for the design, development, and implementation of LL projects. As well as the complexity of these dynamic and multi-faceted contexts, the engagement of older adults, and adults with reducing cognitive and physical capacity in LL research, poses additional ethical challenges. Semi-structured interviews were undertaken with 26 participants to understand multistakeholder experiences related to user engagement and related ethical issues in emerging LL research. The participants’ experiences and concerns are reported and translated into an ethical framework to guide future LL research initiatives.

Original language	English
Pages (from-to)	111-127
Number of pages	17
Journal	Journal of Empirical Research on Human Research Ethics
Volume	15
Issue number	3
Early online date	18 Sept 2019
DOIs	https://doi.org/10.1177/1556264619873790
Publication status	Published - 1 Jul 2020

Funder

The research study was part of a 12-month project funded by Coventry University, as a Vice Chancellor’s Challenge, aiming to create a foundation project that would be of significant benefit to multiple faculties and stakeholders involved in the Data Driven Research and Innovation (DDRI) Program (an emerging Living Lab) and pave the way for future research in this area.

Keywords

Living Lab
research ethics
older adults
adults with dementia
qualitative content analysis
requirement elicitation

Access to Document

10.1177/1556264619873790

JERHRE Callari et al. Manuscript_rev.2Accepted author manuscript, 189 KB

Cite this

@article{c5b1c9afd58e47619a1fdde3be7bf4d5,

title = "Stakeholder Requirements for an Ethical Framework to Sustain Multiple Research Projects in an Emerging Living Lab Involving Older Adults",

abstract = "Living Lab (LL) research should follow clear ethical guidelines and principles. While these exist in specific disciplinary contexts, there is a lack of tailored and specific ethical guidelines for the design, development, and implementation of LL projects. As well as the complexity of these dynamic and multi-faceted contexts, the engagement of older adults, and adults with reducing cognitive and physical capacity in LL research, poses additional ethical challenges. Semi-structured interviews were undertaken with 26 participants to understand multistakeholder experiences related to user engagement and related ethical issues in emerging LL research. The participants{\textquoteright} experiences and concerns are reported and translated into an ethical framework to guide future LL research initiatives.",

keywords = "Living Lab, research ethics, older adults, adults with dementia, qualitative content analysis, requirement elicitation",

author = "Callari, \{Tiziana C.\} and Louise Moody and Janet Saunders and Gillian Ward and Julie Woodley",

year = "2020",

month = jul,

day = "1",

doi = "10.1177/1556264619873790",

language = "English",

volume = "15",

pages = "111--127",

journal = "Journal of Empirical Research on Human Research Ethics",

issn = "1556-2646",

publisher = "SAGE Publications",

number = "3",

}

TY - JOUR

T1 - Stakeholder Requirements for an Ethical Framework to Sustain Multiple Research Projects in an Emerging Living Lab Involving Older Adults

AU - Callari, Tiziana C.

AU - Moody, Louise

AU - Saunders, Janet

AU - Ward, Gillian

AU - Woodley, Julie

PY - 2020/7/1

Y1 - 2020/7/1

N2 - Living Lab (LL) research should follow clear ethical guidelines and principles. While these exist in specific disciplinary contexts, there is a lack of tailored and specific ethical guidelines for the design, development, and implementation of LL projects. As well as the complexity of these dynamic and multi-faceted contexts, the engagement of older adults, and adults with reducing cognitive and physical capacity in LL research, poses additional ethical challenges. Semi-structured interviews were undertaken with 26 participants to understand multistakeholder experiences related to user engagement and related ethical issues in emerging LL research. The participants’ experiences and concerns are reported and translated into an ethical framework to guide future LL research initiatives.

AB - Living Lab (LL) research should follow clear ethical guidelines and principles. While these exist in specific disciplinary contexts, there is a lack of tailored and specific ethical guidelines for the design, development, and implementation of LL projects. As well as the complexity of these dynamic and multi-faceted contexts, the engagement of older adults, and adults with reducing cognitive and physical capacity in LL research, poses additional ethical challenges. Semi-structured interviews were undertaken with 26 participants to understand multistakeholder experiences related to user engagement and related ethical issues in emerging LL research. The participants’ experiences and concerns are reported and translated into an ethical framework to guide future LL research initiatives.

KW - Living Lab

KW - research ethics

KW - older adults

KW - adults with dementia

KW - qualitative content analysis

KW - requirement elicitation

UR - https://www.scopus.com/pages/publications/85074295874

U2 - 10.1177/1556264619873790

DO - 10.1177/1556264619873790

M3 - Article

SN - 1556-2646

VL - 15

SP - 111

EP - 127

JO - Journal of Empirical Research on Human Research Ethics

JF - Journal of Empirical Research on Human Research Ethics

IS - 3

ER -

Stakeholder Requirements for an Ethical Framework to Sustain Multiple Research Projects in an Emerging Living Lab Involving Older Adults

Abstract

Funder

Keywords

Access to Document

Other files and links

Fingerprint

Data Driven Research and Innovation (DDRI) Programme

DDRI: Understanding and co-designing mechanisms for research participation within the DDRI model

Louise Moody

Cite this

Stakeholder Requirements for an Ethical Framework to Sustain Multiple Research Projects in an Emerging Living Lab Involving Older Adults

Abstract

Funder

Keywords

Access to Document

Other files and links

Fingerprint

Activities

Data Driven Research and Innovation (DDRI) Programme

Projects

DDRI: Understanding and co-designing mechanisms for research participation within the DDRI model

Profiles

Louise Moody

Cite this