Reaching consensus on reporting patient and public involvement (PPI) in research: Methods and lessons learned from the development of reporting guidelines

J. Brett; S. Staniszewska; I. Simera; K. Seers; C. Mockford; S. Goodlad; D. Altman; D. Moher; R. Barber; S. Denegri; A.R. Entwistle; P. Littlejohns; C. Morris; R. Suleman; V. Thomas; C. Tysall

doi:10.1136/bmjopen-2017-016948

Reaching consensus on reporting patient and public involvement (PPI) in research: Methods and lessons learned from the development of reporting guidelines

J. Brett, S. Staniszewska, I. Simera, K. Seers, C. Mockford, S. Goodlad, D. Altman, D. Moher, R. Barber, S. Denegri, A.R. Entwistle, P. Littlejohns, C. Morris, R. Suleman, V. Thomas, C. Tysall

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Abstract

Introduction Patient and public involvement (PPI) is inconsistently reported in health and social care research. Improving the quality of how PPI is reported is critical in developing a higher quality evidence base to gain a better insight into the methods and impact of PPI. This paper describes the methods used to develop and gain consensus on guidelines for reporting PPI in research studies (updated version of the Guidance for Reporting Patient and Public Involvement (GRIPP2)).

Methods There were three key stages in the development of GRIPP2: identification of key items for the guideline from systematic review evidence of the impact of PPI on health research and health services, a three-phase online Delphi survey with a diverse sample of experts in PPI to gain consensus on included items and a face-to-face consensus meeting to finalise and reach definitive agreement on GRIPP2. Challenges and lessons learnt during the development of the reporting guidelines are reported.

Discussion The process of reaching consensus is vital within the development of guidelines and policy directions, although debate around how best to reach consensus is still needed. This paper discusses the critical stages of consensus development as applied to the development of consensus for GRIPP2 and discusses the benefits and challenges of consensus development.

Original language	English
Article number	e016948
Number of pages	10
Journal	BMJ Open
Volume	7
DOIs	https://doi.org/10.1136/bmjopen-2017-016948
Publication status	Published - 22 Oct 2017
Externally published	Yes

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This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/

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Brett, J., Staniszewska, S., Simera, I., Seers, K., Mockford, C., Goodlad, S., Altman, D., Moher, D., Barber, R., Denegri, S., Entwistle, A. R., Littlejohns, P., Morris, C., Suleman, R., Thomas, V., & Tysall, C. (2017). Reaching consensus on reporting patient and public involvement (PPI) in research: Methods and lessons learned from the development of reporting guidelines. BMJ Open, 7, Article e016948. https://doi.org/10.1136/bmjopen-2017-016948

Brett, J, Staniszewska, S, Simera, I, Seers, K, Mockford, C, Goodlad, S, Altman, D, Moher, D, Barber, R, Denegri, S, Entwistle, AR, Littlejohns, P, Morris, C, Suleman, R, Thomas, V & Tysall, C 2017, 'Reaching consensus on reporting patient and public involvement (PPI) in research: Methods and lessons learned from the development of reporting guidelines', BMJ Open, vol. 7, e016948. https://doi.org/10.1136/bmjopen-2017-016948

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title = "Reaching consensus on reporting patient and public involvement (PPI) in research: Methods and lessons learned from the development of reporting guidelines",

abstract = "Introduction Patient and public involvement (PPI) is inconsistently reported in health and social care research. Improving the quality of how PPI is reported is critical in developing a higher quality evidence base to gain a better insight into the methods and impact of PPI. This paper describes the methods used to develop and gain consensus on guidelines for reporting PPI in research studies (updated version of the Guidance for Reporting Patient and Public Involvement (GRIPP2)).Methods There were three key stages in the development of GRIPP2: identification of key items for the guideline from systematic review evidence of the impact of PPI on health research and health services, a three-phase online Delphi survey with a diverse sample of experts in PPI to gain consensus on included items and a face-to-face consensus meeting to finalise and reach definitive agreement on GRIPP2. Challenges and lessons learnt during the development of the reporting guidelines are reported.Discussion The process of reaching consensus is vital within the development of guidelines and policy directions, although debate around how best to reach consensus is still needed. This paper discusses the critical stages of consensus development as applied to the development of consensus for GRIPP2 and discusses the benefits and challenges of consensus development.",

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AU - Seers, K.

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AU - Goodlad, S.

AU - Altman, D.

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AU - Barber, R.

AU - Denegri, S.

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AU - Morris, C.

AU - Suleman, R.

AU - Thomas, V.

AU - Tysall, C.

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N2 - Introduction Patient and public involvement (PPI) is inconsistently reported in health and social care research. Improving the quality of how PPI is reported is critical in developing a higher quality evidence base to gain a better insight into the methods and impact of PPI. This paper describes the methods used to develop and gain consensus on guidelines for reporting PPI in research studies (updated version of the Guidance for Reporting Patient and Public Involvement (GRIPP2)).Methods There were three key stages in the development of GRIPP2: identification of key items for the guideline from systematic review evidence of the impact of PPI on health research and health services, a three-phase online Delphi survey with a diverse sample of experts in PPI to gain consensus on included items and a face-to-face consensus meeting to finalise and reach definitive agreement on GRIPP2. Challenges and lessons learnt during the development of the reporting guidelines are reported.Discussion The process of reaching consensus is vital within the development of guidelines and policy directions, although debate around how best to reach consensus is still needed. This paper discusses the critical stages of consensus development as applied to the development of consensus for GRIPP2 and discusses the benefits and challenges of consensus development.

AB - Introduction Patient and public involvement (PPI) is inconsistently reported in health and social care research. Improving the quality of how PPI is reported is critical in developing a higher quality evidence base to gain a better insight into the methods and impact of PPI. This paper describes the methods used to develop and gain consensus on guidelines for reporting PPI in research studies (updated version of the Guidance for Reporting Patient and Public Involvement (GRIPP2)).Methods There were three key stages in the development of GRIPP2: identification of key items for the guideline from systematic review evidence of the impact of PPI on health research and health services, a three-phase online Delphi survey with a diverse sample of experts in PPI to gain consensus on included items and a face-to-face consensus meeting to finalise and reach definitive agreement on GRIPP2. Challenges and lessons learnt during the development of the reporting guidelines are reported.Discussion The process of reaching consensus is vital within the development of guidelines and policy directions, although debate around how best to reach consensus is still needed. This paper discusses the critical stages of consensus development as applied to the development of consensus for GRIPP2 and discusses the benefits and challenges of consensus development.

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ER -

Reaching consensus on reporting patient and public involvement (PPI) in research: Methods and lessons learned from the development of reporting guidelines

Abstract

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