Abstract
The demand for alternative methods of providing informed consent is increasing, especially in research with marginalised (or illiterate) research participants. This article discusses the co-creation of a visual informed consent (VIC), in collaboration with an artist. The VIC was inspired by the experience of obtaining informed consent from a group of migrant women with limited English proficiency, in empirical research undertaken on agroecology and health in Coventry, UK. Reflecting further on its creation and wider utility, this article explores the inner values that might guide researchers and lead to the co-creation of care-full tools that meet the needs of research participants. Specifically, this includes, reflecting on the iterative process of developing a VIC and using an ethics of care as a primary conceptual framework. Findings reveal that participants’ understanding of ethical issues is facilitated using visual illustrations. It is argued that the creation of a VIC requires the researcher to be attentive to the embodied nature of research practice and guided by an ethics of care. A conceptual framework that integrates care and embodiment is presented, with the intention that it may further support the development of care-full research by others.
Original language | English |
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Pages (from-to) | 1186-1210 |
Number of pages | 25 |
Journal | Qualitative Research |
Volume | 24 |
Issue number | 5 |
Early online date | 10 Jan 2024 |
DOIs | |
Publication status | E-pub ahead of print - 10 Jan 2024 |
Bibliographical note
This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).Funder
The authors disclosed receipt of the following financial support for the research, authorship and/or publication of this article: This work was supported by the European Union’s Horizon 2020 research and innovation programme, (Marie Sklodowska-Curie grant agreement No 765389).Keywords
- Visual informed consent
- marginal communities
- comics
- ethics of care
- science communication