Parents’ and carers’ experiences of transition and aftercare following a child's discharge from a paediatric intensive care unit to an in-patient ward setting: A qualitative systematic review

Zainab Suleman, Catrin Evans, Joseph C. Manning

Research output: Contribution to journalReview article

Abstract

Objectives
To explore parents’ experiences of transition and aftercare following their child’s discharge from a paediatric intensive care unit to an in-patient ward.

Methods
A qualitative systematic review was conducted. Electronic databases CINAHL, MEDLINE, EMBASE, Psych INFO, and ASSIA were searched for qualitative studies with no date limits imposed. Methodological quality was assessed using the JBI QARI standardised critical appraisal instrument. Data were extracted into a standardised data extraction tool. Findings were pooled using a meta-aggregative approach.

Results
Four studies were included in the final review that included a total of 95 participants. Forty-nine findings were extracted and through an iterative process resulting in four synthesised findings being developed. These included: (1) Dynamic emotional response pre, peri and post-transfer; (2) Involvement in care absent but fundamental to functioning; (3) Changes in care delivery and environment provoking adverse emotions and (4) Transition as a physical, emotional and social balancing act.

Conclusion
Transitioning from the paediatric intensive care unit to an in-patient ward can be a challenging time for parents, exposing them to a turbulent emotional and social status, and depleting their personal resources. Parents are aware of differences in the organisation and delivery of care between clinical areas which can compound the adversity experienced. Health professionals need to provide targeted support in order to mitigate these negative emotional, physical and social effects experienced.

Keywords
Original languageEnglish
Pages (from-to)(In-press)
JournalIntensive and Critical Care Nursing
Volume(In-press)
Early online date16 Nov 2018
DOIs
Publication statusE-pub ahead of print - 16 Nov 2018

Fingerprint

Aftercare
Pediatric Intensive Care Units
Caregivers
Parents
MEDLINE
Emotions
Organizations
Databases
Health

Bibliographical note

NOTICE: this is the author’s version of a work that was accepted for publication in Intensive and Critical Care Nursing. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Intensive and Critical Care Nursing [In-press] [ISS], (2018)] DOI: 10.1016/j.iccn.2018.10.003

© 2017, Elsevier. Licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/

Copyright © and Moral Rights are retained by the author(s) and/ or other copyright owners. A copy can be downloaded for personal non-commercial research or study, without prior permission or charge. This item cannot be reproduced or quoted extensively from without first obtaining permission in writing from the copyright holder(s). The content must not be changed in any way or sold commercially in any format or medium without the formal permission of the copyright holders.

Keywords

  • Parents
  • Children
  • Paediatric intensive care
  • Transition
  • Meta-synthesis
  • Qualitative research
  • Aftercare
  • Discharge
  • Inpatient ward

ASJC Scopus subject areas

  • Critical Care

Cite this

Parents’ and carers’ experiences of transition and aftercare following a child's discharge from a paediatric intensive care unit to an in-patient ward setting : A qualitative systematic review. / Suleman, Zainab; Evans, Catrin; Manning, Joseph C.

In: Intensive and Critical Care Nursing , Vol. (In-press), 16.11.2018, p. (In-press).

Research output: Contribution to journalReview article

@article{f90d45477e884d9b80b6c1e796ee16ae,
title = "Parents’ and carers’ experiences of transition and aftercare following a child's discharge from a paediatric intensive care unit to an in-patient ward setting: A qualitative systematic review",
abstract = "ObjectivesTo explore parents’ experiences of transition and aftercare following their child’s discharge from a paediatric intensive care unit to an in-patient ward.MethodsA qualitative systematic review was conducted. Electronic databases CINAHL, MEDLINE, EMBASE, Psych INFO, and ASSIA were searched for qualitative studies with no date limits imposed. Methodological quality was assessed using the JBI QARI standardised critical appraisal instrument. Data were extracted into a standardised data extraction tool. Findings were pooled using a meta-aggregative approach.ResultsFour studies were included in the final review that included a total of 95 participants. Forty-nine findings were extracted and through an iterative process resulting in four synthesised findings being developed. These included: (1) Dynamic emotional response pre, peri and post-transfer; (2) Involvement in care absent but fundamental to functioning; (3) Changes in care delivery and environment provoking adverse emotions and (4) Transition as a physical, emotional and social balancing act.ConclusionTransitioning from the paediatric intensive care unit to an in-patient ward can be a challenging time for parents, exposing them to a turbulent emotional and social status, and depleting their personal resources. Parents are aware of differences in the organisation and delivery of care between clinical areas which can compound the adversity experienced. Health professionals need to provide targeted support in order to mitigate these negative emotional, physical and social effects experienced.Keywords",
keywords = "Parents, Children, Paediatric intensive care, Transition, Meta-synthesis, Qualitative research, Aftercare, Discharge, Inpatient ward",
author = "Zainab Suleman and Catrin Evans and Manning, {Joseph C.}",
note = "NOTICE: this is the author’s version of a work that was accepted for publication in Intensive and Critical Care Nursing. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Intensive and Critical Care Nursing [In-press] [ISS], (2018)] DOI: 10.1016/j.iccn.2018.10.003 {\circledC} 2017, Elsevier. Licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/ Copyright {\circledC} and Moral Rights are retained by the author(s) and/ or other copyright owners. A copy can be downloaded for personal non-commercial research or study, without prior permission or charge. This item cannot be reproduced or quoted extensively from without first obtaining permission in writing from the copyright holder(s). The content must not be changed in any way or sold commercially in any format or medium without the formal permission of the copyright holders.",
year = "2018",
month = "11",
day = "16",
doi = "10.1016/j.iccn.2018.10.003",
language = "English",
volume = "(In-press)",
pages = "(In--press)",
journal = "Intensive and Critical Care Nursing",
issn = "0964-3397",
publisher = "Elsevier",

}

TY - JOUR

T1 - Parents’ and carers’ experiences of transition and aftercare following a child's discharge from a paediatric intensive care unit to an in-patient ward setting

T2 - A qualitative systematic review

AU - Suleman, Zainab

AU - Evans, Catrin

AU - Manning, Joseph C.

N1 - NOTICE: this is the author’s version of a work that was accepted for publication in Intensive and Critical Care Nursing. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Intensive and Critical Care Nursing [In-press] [ISS], (2018)] DOI: 10.1016/j.iccn.2018.10.003 © 2017, Elsevier. Licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/ Copyright © and Moral Rights are retained by the author(s) and/ or other copyright owners. A copy can be downloaded for personal non-commercial research or study, without prior permission or charge. This item cannot be reproduced or quoted extensively from without first obtaining permission in writing from the copyright holder(s). The content must not be changed in any way or sold commercially in any format or medium without the formal permission of the copyright holders.

PY - 2018/11/16

Y1 - 2018/11/16

N2 - ObjectivesTo explore parents’ experiences of transition and aftercare following their child’s discharge from a paediatric intensive care unit to an in-patient ward.MethodsA qualitative systematic review was conducted. Electronic databases CINAHL, MEDLINE, EMBASE, Psych INFO, and ASSIA were searched for qualitative studies with no date limits imposed. Methodological quality was assessed using the JBI QARI standardised critical appraisal instrument. Data were extracted into a standardised data extraction tool. Findings were pooled using a meta-aggregative approach.ResultsFour studies were included in the final review that included a total of 95 participants. Forty-nine findings were extracted and through an iterative process resulting in four synthesised findings being developed. These included: (1) Dynamic emotional response pre, peri and post-transfer; (2) Involvement in care absent but fundamental to functioning; (3) Changes in care delivery and environment provoking adverse emotions and (4) Transition as a physical, emotional and social balancing act.ConclusionTransitioning from the paediatric intensive care unit to an in-patient ward can be a challenging time for parents, exposing them to a turbulent emotional and social status, and depleting their personal resources. Parents are aware of differences in the organisation and delivery of care between clinical areas which can compound the adversity experienced. Health professionals need to provide targeted support in order to mitigate these negative emotional, physical and social effects experienced.Keywords

AB - ObjectivesTo explore parents’ experiences of transition and aftercare following their child’s discharge from a paediatric intensive care unit to an in-patient ward.MethodsA qualitative systematic review was conducted. Electronic databases CINAHL, MEDLINE, EMBASE, Psych INFO, and ASSIA were searched for qualitative studies with no date limits imposed. Methodological quality was assessed using the JBI QARI standardised critical appraisal instrument. Data were extracted into a standardised data extraction tool. Findings were pooled using a meta-aggregative approach.ResultsFour studies were included in the final review that included a total of 95 participants. Forty-nine findings were extracted and through an iterative process resulting in four synthesised findings being developed. These included: (1) Dynamic emotional response pre, peri and post-transfer; (2) Involvement in care absent but fundamental to functioning; (3) Changes in care delivery and environment provoking adverse emotions and (4) Transition as a physical, emotional and social balancing act.ConclusionTransitioning from the paediatric intensive care unit to an in-patient ward can be a challenging time for parents, exposing them to a turbulent emotional and social status, and depleting their personal resources. Parents are aware of differences in the organisation and delivery of care between clinical areas which can compound the adversity experienced. Health professionals need to provide targeted support in order to mitigate these negative emotional, physical and social effects experienced.Keywords

KW - Parents

KW - Children

KW - Paediatric intensive care

KW - Transition

KW - Meta-synthesis

KW - Qualitative research

KW - Aftercare

KW - Discharge

KW - Inpatient ward

UR - http://www.scopus.com/inward/record.url?scp=85056468896&partnerID=8YFLogxK

U2 - 10.1016/j.iccn.2018.10.003

DO - 10.1016/j.iccn.2018.10.003

M3 - Review article

VL - (In-press)

SP - (In-press)

JO - Intensive and Critical Care Nursing

JF - Intensive and Critical Care Nursing

SN - 0964-3397

ER -