Long-term psychosocial impact reported by childhood critical illness survivors: A systematic review

Joseph C Manning, Pippa Hemingway, Sarah A Redsell

Research output: Contribution to journalArticle

26 Citations (Scopus)

Abstract

AIM: To undertake a qualitative systematic review that explores psychological and social impact, reported directly from children and adolescents at least 6 months after their critical illness.

BACKGROUND: Significant advances in critical care have reduced mortality from childhood critical illness, with the majority of patients being discharged alive. However, it is widely reported that surviving critical illness can be traumatic for both children and their family. Despite a growing body of literature in this field, the psychological and social impact of life threatening critical illness on child and adolescent survivors, more than 6 months post event, remains under-reported.

DATA SOURCES: Searches of six online databases were conducted up to February 2012.

REVIEW METHODS: Predetermined criteria were used to select studies. Methodological quality was assessed using a standardized checklist. An adapted version of the thematic synthesis approach was applied to extract, code and synthesize data.

FINDINGS: Three studies met the inclusion criteria, which were all of moderate methodological quality. Initial coding and synthesis of data resulted in five descriptive themes: confusion and uncertainty, other people's narratives, focus on former self and normality, social isolation and loss of identity, and transition and transformation. Further synthesis culminated in three analytical themes that conceptualize the childhood survivors' psychological and social journey following critical illness.

CONCLUSIONS: Critical illness in childhood can expose survivors to a complex trajectory of recovery, with enduring psychosocial adversity manifesting in the long term. Nurses and other health professionals must be aware and support the potential multifaceted psychosocial needs that may arise. Parents and families are identified as fundamental in shaping psychological and social well-being of survivors. Therefore intensive care nurses must take opportunities to raise parents' awareness of the journey of survival and provide appropriate support. Further empirical research is warranted to explore the deficits identified with the existing literature.

Original languageEnglish
Pages (from-to)145-156
Number of pages12
JournalNursing in critical care
Volume19
Issue number3
DOIs
Publication statusPublished - 15 Apr 2014
Externally publishedYes

Fingerprint

Critical Illness
Survivors
Psychology
Critical Care
Social Change
Parents
Nurses
Confusion
Social Isolation
Empirical Research
Checklist
Uncertainty
Databases
Survival
Mortality
Health

Keywords

  • Adolescent
  • Child
  • Critical Care Nursing
  • Critical Illness
  • Humans
  • Models, Nursing
  • Nursing Methodology Research
  • Qualitative Research
  • Survivors
  • Journal Article
  • Research Support, Non-U.S. Gov't
  • Review
  • ICU follow-up
  • Paediatric intensive/critical care
  • Psychological care
  • Psychological issues during and after discharge from intensive care
  • Qualitative research
  • Short- and long-term patient outcome from intensive care

Cite this

Long-term psychosocial impact reported by childhood critical illness survivors : A systematic review. / Manning, Joseph C; Hemingway, Pippa; Redsell, Sarah A.

In: Nursing in critical care, Vol. 19, No. 3, 15.04.2014, p. 145-156.

Research output: Contribution to journalArticle

Manning, Joseph C ; Hemingway, Pippa ; Redsell, Sarah A. / Long-term psychosocial impact reported by childhood critical illness survivors : A systematic review. In: Nursing in critical care. 2014 ; Vol. 19, No. 3. pp. 145-156.
@article{8e5f949f02db4d3f908005c33c9831d4,
title = "Long-term psychosocial impact reported by childhood critical illness survivors: A systematic review",
abstract = "AIM: To undertake a qualitative systematic review that explores psychological and social impact, reported directly from children and adolescents at least 6 months after their critical illness.BACKGROUND: Significant advances in critical care have reduced mortality from childhood critical illness, with the majority of patients being discharged alive. However, it is widely reported that surviving critical illness can be traumatic for both children and their family. Despite a growing body of literature in this field, the psychological and social impact of life threatening critical illness on child and adolescent survivors, more than 6 months post event, remains under-reported.DATA SOURCES: Searches of six online databases were conducted up to February 2012.REVIEW METHODS: Predetermined criteria were used to select studies. Methodological quality was assessed using a standardized checklist. An adapted version of the thematic synthesis approach was applied to extract, code and synthesize data.FINDINGS: Three studies met the inclusion criteria, which were all of moderate methodological quality. Initial coding and synthesis of data resulted in five descriptive themes: confusion and uncertainty, other people's narratives, focus on former self and normality, social isolation and loss of identity, and transition and transformation. Further synthesis culminated in three analytical themes that conceptualize the childhood survivors' psychological and social journey following critical illness.CONCLUSIONS: Critical illness in childhood can expose survivors to a complex trajectory of recovery, with enduring psychosocial adversity manifesting in the long term. Nurses and other health professionals must be aware and support the potential multifaceted psychosocial needs that may arise. Parents and families are identified as fundamental in shaping psychological and social well-being of survivors. Therefore intensive care nurses must take opportunities to raise parents' awareness of the journey of survival and provide appropriate support. Further empirical research is warranted to explore the deficits identified with the existing literature.",
keywords = "Adolescent, Child, Critical Care Nursing, Critical Illness, Humans, Models, Nursing, Nursing Methodology Research, Qualitative Research, Survivors, Journal Article, Research Support, Non-U.S. Gov't, Review, ICU follow-up, Paediatric intensive/critical care, Psychological care, Psychological issues during and after discharge from intensive care, Qualitative research, Short- and long-term patient outcome from intensive care",
author = "Manning, {Joseph C} and Pippa Hemingway and Redsell, {Sarah A}",
note = "{\circledC} 2013 The Authors. Nursing in Critical Care published by John Wiley & Sons, Ltd on behalf of British Association of Critical Care Nurses.",
year = "2014",
month = "4",
day = "15",
doi = "10.1111/nicc.12049",
language = "English",
volume = "19",
pages = "145--156",
journal = "Nursing in critical care",
issn = "1362-1017",
publisher = "Wiley",
number = "3",

}

TY - JOUR

T1 - Long-term psychosocial impact reported by childhood critical illness survivors

T2 - A systematic review

AU - Manning, Joseph C

AU - Hemingway, Pippa

AU - Redsell, Sarah A

N1 - © 2013 The Authors. Nursing in Critical Care published by John Wiley & Sons, Ltd on behalf of British Association of Critical Care Nurses.

PY - 2014/4/15

Y1 - 2014/4/15

N2 - AIM: To undertake a qualitative systematic review that explores psychological and social impact, reported directly from children and adolescents at least 6 months after their critical illness.BACKGROUND: Significant advances in critical care have reduced mortality from childhood critical illness, with the majority of patients being discharged alive. However, it is widely reported that surviving critical illness can be traumatic for both children and their family. Despite a growing body of literature in this field, the psychological and social impact of life threatening critical illness on child and adolescent survivors, more than 6 months post event, remains under-reported.DATA SOURCES: Searches of six online databases were conducted up to February 2012.REVIEW METHODS: Predetermined criteria were used to select studies. Methodological quality was assessed using a standardized checklist. An adapted version of the thematic synthesis approach was applied to extract, code and synthesize data.FINDINGS: Three studies met the inclusion criteria, which were all of moderate methodological quality. Initial coding and synthesis of data resulted in five descriptive themes: confusion and uncertainty, other people's narratives, focus on former self and normality, social isolation and loss of identity, and transition and transformation. Further synthesis culminated in three analytical themes that conceptualize the childhood survivors' psychological and social journey following critical illness.CONCLUSIONS: Critical illness in childhood can expose survivors to a complex trajectory of recovery, with enduring psychosocial adversity manifesting in the long term. Nurses and other health professionals must be aware and support the potential multifaceted psychosocial needs that may arise. Parents and families are identified as fundamental in shaping psychological and social well-being of survivors. Therefore intensive care nurses must take opportunities to raise parents' awareness of the journey of survival and provide appropriate support. Further empirical research is warranted to explore the deficits identified with the existing literature.

AB - AIM: To undertake a qualitative systematic review that explores psychological and social impact, reported directly from children and adolescents at least 6 months after their critical illness.BACKGROUND: Significant advances in critical care have reduced mortality from childhood critical illness, with the majority of patients being discharged alive. However, it is widely reported that surviving critical illness can be traumatic for both children and their family. Despite a growing body of literature in this field, the psychological and social impact of life threatening critical illness on child and adolescent survivors, more than 6 months post event, remains under-reported.DATA SOURCES: Searches of six online databases were conducted up to February 2012.REVIEW METHODS: Predetermined criteria were used to select studies. Methodological quality was assessed using a standardized checklist. An adapted version of the thematic synthesis approach was applied to extract, code and synthesize data.FINDINGS: Three studies met the inclusion criteria, which were all of moderate methodological quality. Initial coding and synthesis of data resulted in five descriptive themes: confusion and uncertainty, other people's narratives, focus on former self and normality, social isolation and loss of identity, and transition and transformation. Further synthesis culminated in three analytical themes that conceptualize the childhood survivors' psychological and social journey following critical illness.CONCLUSIONS: Critical illness in childhood can expose survivors to a complex trajectory of recovery, with enduring psychosocial adversity manifesting in the long term. Nurses and other health professionals must be aware and support the potential multifaceted psychosocial needs that may arise. Parents and families are identified as fundamental in shaping psychological and social well-being of survivors. Therefore intensive care nurses must take opportunities to raise parents' awareness of the journey of survival and provide appropriate support. Further empirical research is warranted to explore the deficits identified with the existing literature.

KW - Adolescent

KW - Child

KW - Critical Care Nursing

KW - Critical Illness

KW - Humans

KW - Models, Nursing

KW - Nursing Methodology Research

KW - Qualitative Research

KW - Survivors

KW - Journal Article

KW - Research Support, Non-U.S. Gov't

KW - Review

KW - ICU follow-up

KW - Paediatric intensive/critical care

KW - Psychological care

KW - Psychological issues during and after discharge from intensive care

KW - Qualitative research

KW - Short- and long-term patient outcome from intensive care

U2 - 10.1111/nicc.12049

DO - 10.1111/nicc.12049

M3 - Article

VL - 19

SP - 145

EP - 156

JO - Nursing in critical care

JF - Nursing in critical care

SN - 1362-1017

IS - 3

ER -