'Lean in, Don't Step Back' - the views, experiences and expectations of people with severe mental illness, and their carers, on palliative and end of life care

Jed S Jerwood, Diane Phimister, Nikki Holliday, Gillian Ward, Jane Coad

Research output: Contribution to conferencePoster

Abstract

Research which concerns the experiences and expectations of people with mental illnesses and terminal conditions is extremely limited both in the UK and internationally. What is known is that people with mental ill health experience higher rates of many physical health issues, later diagnosis and poorer prognosis than the general population (Royal College of Psychiatrists, 2013). People with mental illness experience many barriers when trying to access palliative and end of life care services and are poorly supported following terminal diagnosis by mental health services. The aim of this research was to conduct interviews with patients with histories of mental illness and terminal physical conditions, and their carers, to better understand their experiences and expectations of palliative and end of life care, and how more effective support and care could be provided by palliative, end of life, and mental health care services.
Original languageEnglish
DOIs
Publication statusPublished - May 2019
Event16th World Congress of the European Association of Palliative Care - Berlin, Germany
Duration: 23 May 201925 May 2019
Conference number: 16
https://www.eapc-2019.org/home.html

Conference

Conference16th World Congress of the European Association of Palliative Care
Abbreviated titleEAPC 2019
CountryGermany
CityBerlin
Period23/05/1925/05/19
Internet address

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Terminal Care
Mental Health Services
Caregivers
Delayed Diagnosis
Research
Mental Health
Interviews
Delivery of Health Care
Health
Population

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'Lean in, Don't Step Back' - the views, experiences and expectations of people with severe mental illness, and their carers, on palliative and end of life care. / Jerwood, Jed S; Phimister, Diane; Holliday, Nikki; Ward, Gillian; Coad, Jane.

2019. Poster session presented at 16th World Congress of the European Association of Palliative Care, Berlin, Germany.

Research output: Contribution to conferencePoster

Jerwood, Jed S ; Phimister, Diane ; Holliday, Nikki ; Ward, Gillian ; Coad, Jane. / 'Lean in, Don't Step Back' - the views, experiences and expectations of people with severe mental illness, and their carers, on palliative and end of life care. Poster session presented at 16th World Congress of the European Association of Palliative Care, Berlin, Germany.
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