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Issues experienced and support provided to adolescents and young adults at the end of active treatment for cancer literature: A rapid review of the literature

  • Sarah Lea
  • , Ana Martins
  • , Matt Bassett
  • , Maria Cable
  • , Gary Doig
  • , Lorna A. Fern
  • , Sue Morgan
  • , Louise Soanes
  • , Sam Smith
  • , Michael Whelan
  • , Rachel M. Taylor
    • University College London Hospitals NHS Foundation Trust
    • Teenage Cancer Trust
    • Leeds Teaching Hospitals NHS Trust

    Research output: Contribution to journalArticlepeer-review

    Abstract

    Introduction
    The end of active treatment is a stressful period for adolescents and young adults (AYA), but little is known about AYA experiences at this time point. The aim was to describe the issues young people experienced and identify interventions to support AYA at the end of treatment.

    Methods
    We conducted a rapid review of published primary research to identify what is currently known about AYA experiences of the end of treatment, the issues which arise and existing interventions to support AYA at this time.

    Results
    Searches identified 540 papers of which 16 met the inclusion criteria. Five main themes were identified: physical/medical issues; psychological, social and emotional issues; information and support needs; sources of information and support; and difficulties accessing information and support. Within these broader themes, several subthemes were identified and explored further.

    Conclusion
    Adolescents and young adults are under prepared for the unpredictable and ongoing nature of the physical, psychological and social issues they face at the end of cancer treatment. Enabling young people's inclusion within their relevant social and educational peer networks should be a priority. Timely, structured and equitable information/support is needed to prepare AYA for treatment ending and subsequent reintegration to “everyday” life.

    Original languageEnglish
    Article numbere12972
    JournalEuropean Journal of Cancer Care
    Volume27
    Issue number6
    DOIs
    Publication statusPublished - 28 Nov 2018

    UN SDGs

    This output contributes to the following UN Sustainable Development Goals (SDGs)

    1. SDG 3 - Good Health and Well-being
      SDG 3 Good Health and Well-being

    Keywords

    • Early consequences
    • Early survivorship
    • End of treatment
    • Teenagers
    • Transition
    • Young people

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