Abstract
Oculocutaneous albinism is an inherited condition with significant health and social impact on the lives of those affected throughout sub-Saharan, including in Malawi. Myths and superstitions surrounding the condition lead to stigmatisation, rejection and misconceptions. In a participatory study, consultations with educational professionals, children with albinism and their families documented the barriers to full educational access and revealed low-cost strategies that could be implemented in mainstream schools, to minimise the effect of the visual impairment associated with albinism. These were captured in two information booklets in English and vernacular, one for children and the other appropriate for teacher training.
Original language | English |
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Pages (from-to) | 216–224 |
Journal | International Journal of Educational Development |
Volume | 39 |
Early online date | 14 Aug 2014 |
DOIs | |
Publication status | Published - Nov 2014 |
Bibliographical note
NOTICE: this is the author’s version of a work that was accepted for publication in the International Journal of Educational Development. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in the International Journal of Educational Development [Vol 39 (2014)] DOI: 10.1016/j.ijedudev.2014.07.002.Funder
Commonwealth Secretariat and the British Academy as well as funding and logistical assistance from Sightsavers Malawi Country Office.Keywords
- albinism
- resource centres
- special educational needs
- teacher training
- visual impairment