Hypermobile Ehlers-Danlos Syndrome during Pregnancy, Birth and Beyond: A Review of Midwifery Care Considerations

Sally Pezaro, Gemma Pearce, Emma Reinhold

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3 Citations (Scopus)
235 Downloads (Pure)

Abstract

The Ehlers-Danlos Syndromes (EDS) are an underdiagnosed group of conditions with implications and risks associated with childbearing. Those with EDS suggest that healthcare professionals have a lack of awareness in this area, and consequently describe delays in access to appropriate healthcare services. This paper draws on the existing international evidence available to present evidence-based care considerations for childbearing women with hypermobile Ehlers-Danlos Syndrome (hEDS) throughout the antenatal, intrapartum and postnatal periods. Care considerations are also offered in relation to the care of the newborn infant. The management of hEDS in childbearing women and babies can be complex. Findings point to the need for a multidisciplinary approach to formulating individualised care plans in partnership with women. In understanding the evidence in relation to this issue, midwives will be better able to practice evidence-based and woman-centred care.
Original languageEnglish
JournalBritish Journal of Midwifery
Volume26
Issue number4
DOIs
Publication statusPublished - 2 Apr 2018

Fingerprint

Ehlers-Danlos Syndrome
Midwifery
Parturition
Pregnancy
Delivery of Health Care
Evidence-Based Practice
Newborn Infant

Bibliographical note

This document is the Accepted Manuscript version of a Published Work that appeared in final form in the British Journal of Midwifery, Vol 26 (4), copyright © MA Healthcare, after peer review and technical editing by the publisher. To access the final edited and published work see https://doi.org/10.12968/bjom.2018.26.4.217

Keywords

  • Midwifery
  • Pregnancy
  • Ehlera-Danlos Syndrome
  • Birth
  • Joint instability
  • Obstetric
  • Parturition

Cite this

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abstract = "The Ehlers-Danlos Syndromes (EDS) are an underdiagnosed group of conditions with implications and risks associated with childbearing. Those with EDS suggest that healthcare professionals have a lack of awareness in this area, and consequently describe delays in access to appropriate healthcare services. This paper draws on the existing international evidence available to present evidence-based care considerations for childbearing women with hypermobile Ehlers-Danlos Syndrome (hEDS) throughout the antenatal, intrapartum and postnatal periods. Care considerations are also offered in relation to the care of the newborn infant. The management of hEDS in childbearing women and babies can be complex. Findings point to the need for a multidisciplinary approach to formulating individualised care plans in partnership with women. In understanding the evidence in relation to this issue, midwives will be better able to practice evidence-based and woman-centred care.",
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