Hypermobile Ehlers-Danlos Syndrome during Pregnancy, Birth and Beyond: A Review of Midwifery Care Considerations

Sally Pezaro; Gemma Pearce; Emma Reinhold

doi:10.12968/bjom.2018.26.4.217

Hypermobile Ehlers-Danlos Syndrome during Pregnancy, Birth and Beyond: A Review of Midwifery Care Considerations

Sally Pezaro, Gemma Pearce, Emma Reinhold

School of Nursing, Midwifery and Health

Royal College of General Practitioners

Research output: Contribution to journal › Article › peer-review

20 Citations (Scopus)

1059 Downloads (Pure)

Abstract

The Ehlers-Danlos Syndromes (EDS) are an underdiagnosed group of conditions with implications and risks associated with childbearing. Those with EDS suggest that healthcare professionals have a lack of awareness in this area, and consequently describe delays in access to appropriate healthcare services. This paper draws on the existing international evidence available to present evidence-based care considerations for childbearing women with hypermobile Ehlers-Danlos Syndrome (hEDS) throughout the antenatal, intrapartum and postnatal periods. Care considerations are also offered in relation to the care of the newborn infant. The management of hEDS in childbearing women and babies can be complex. Findings point to the need for a multidisciplinary approach to formulating individualised care plans in partnership with women. In understanding the evidence in relation to this issue, midwives will be better able to practice evidence-based and woman-centred care.

Original language	English
Journal	British Journal of Midwifery
Volume	26
Issue number	4
DOIs	https://doi.org/10.12968/bjom.2018.26.4.217
Publication status	Published - 2 Apr 2018

Bibliographical note

This document is the Accepted Manuscript version of a Published Work that appeared in final form in the British Journal of Midwifery, Vol 26 (4), copyright © MA Healthcare, after peer review and technical editing by the publisher. To access the final edited and published work see https://doi.org/10.12968/bjom.2018.26.4.217

Keywords

Midwifery
Pregnancy
Ehlera-Danlos Syndrome
Birth
Joint instability
Obstetric
Parturition

Access to Document

10.12968/bjom.2018.26.4.217

SPezaroBJM264Accepted author manuscript, 589 KB
Hypermobile Ehlers-Danlos Syndrome during pregnancy birth and beyond bjom.2018.26.4.217Final published version, 119 KB

20 Citations
1 Article

Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study
Pezaro, S., Pearce, G. & Reinhold, E., Sept 2020, In: Midwifery. 88, 102749.
Research output: Contribution to journal › Article › peer-review

Open Access
File
13 Citations (Scopus)

1012 Downloads (Pure)

Gemma Pearce
- Centre for Healthcare and Communities - Associate Professor (Research)
Person: Teaching and Research

Cite this

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title = "Hypermobile Ehlers-Danlos Syndrome during Pregnancy, Birth and Beyond: A Review of Midwifery Care Considerations",

abstract = "The Ehlers-Danlos Syndromes (EDS) are an underdiagnosed group of conditions with implications and risks associated with childbearing. Those with EDS suggest that healthcare professionals have a lack of awareness in this area, and consequently describe delays in access to appropriate healthcare services. This paper draws on the existing international evidence available to present evidence-based care considerations for childbearing women with hypermobile Ehlers-Danlos Syndrome (hEDS) throughout the antenatal, intrapartum and postnatal periods. Care considerations are also offered in relation to the care of the newborn infant. The management of hEDS in childbearing women and babies can be complex. Findings point to the need for a multidisciplinary approach to formulating individualised care plans in partnership with women. In understanding the evidence in relation to this issue, midwives will be better able to practice evidence-based and woman-centred care.",

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Hypermobile Ehlers-Danlos Syndrome during Pregnancy, Birth and Beyond: A Review of Midwifery Care Considerations

Abstract

Bibliographical note

Keywords

Access to Document

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Research output

Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study

Profiles

Gemma Pearce

Cite this