Exploring the need for, and feasibility of, a web-based self-management resource for teenage and young adult cancer survivors in the UK

Louise Moody; Andy Turner; Jane Osmond; Jo Kosmala-Anderson; Louise Hooker; Lynn Batehup

doi:10.1007/978-3-642-39241-2_46

Exploring the need for, and feasibility of, a web-based self-management resource for teenage and young adult cancer survivors in the UK

Louise Moody
, Andy Turner
, Jane Osmond
, Jo Kosmala-Anderson
, Louise Hooker
, Lynn Batehup

Coventry University

University of Southampton
Macmillan Cancer Support

Research output: Chapter in Book/Report/Conference proceeding › Conference proceeding › peer-review

2 Citations (Scopus)

Abstract

The growth in social networking sites and online forums make the internet a potential platform to be considered for the provision of self-management and e-learning support to young people following cancer treatment. However, the feasibility and potential barriers to this as a post treatment option should be considered. A mixed methods approach was adopted that included an online survey, focus groups and interviews with cancer survivors, their parents, and information technology, clinical and social work professionals to consider the potential of a web-based self-management resource. Barriers were identified to the delivery of care using this method. Developing such a self-management system requires close working between IT and clinical staff, alongside patient representation and usability expertise. As computer access and use amongst this group is commonplace, there is an expectation that self-management needs will be met at least partially in this way in the future.

Original language	English
Title of host publication	Design, User Experience, and Usability. Health, Learning, Playing, Cultural, and Cross-Cultural User Experience
Subtitle of host publication	Second International Conference, DUXU 2013, Held as Part of HCI International 2013, Las Vegas, NV, USA, July 21-26, 2013, Proceedings, Part II
Place of Publication	Berlin
Publisher	Springer Verlag
Pages	417-423
Number of pages	7
Volume	8013 LNCS
Edition	PART 2
ISBN (Electronic)	978-3-642-39241-2
ISBN (Print)	978-3-642-39240-5
DOIs	https://doi.org/10.1007/978-3-642-39241-2_46
Publication status	Published - 2013
Event	2nd International Conference on Design, User Experience, and Usability: Health, Learning, Playing, Cultural, and Cross-Cultural User Experience, DUXU 2013, Held as Part of 15th International Conference on Human-Computer Interaction, HCI Int. 2013 - Las Vegas, United States Duration: 21 Jul 2013 → 26 Jul 2013

Publication series

Name	Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)
Number	PART 2
Volume	8013 LNCS
ISSN (Print)	03029743
ISSN (Electronic)	16113349

Conference

Conference	2nd International Conference on Design, User Experience, and Usability: Health, Learning, Playing, Cultural, and Cross-Cultural User Experience, DUXU 2013, Held as Part of 15th International Conference on Human-Computer Interaction, HCI Int. 2013
Country/Territory	United States
City	Las Vegas
Period	21/07/13 → 26/07/13

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

online support
Web-based self-management
young cancer survivors

ASJC Scopus subject areas

General Computer Science
Theoretical Computer Science

Access to Document

10.1007/978-3-642-39241-2_46

Cite this

Moody, L., Turner, A., Osmond, J., Kosmala-Anderson, J., Hooker, L., & Batehup, L. (2013). Exploring the need for, and feasibility of, a web-based self-management resource for teenage and young adult cancer survivors in the UK. In Design, User Experience, and Usability. Health, Learning, Playing, Cultural, and Cross-Cultural User Experience: Second International Conference, DUXU 2013, Held as Part of HCI International 2013, Las Vegas, NV, USA, July 21-26, 2013, Proceedings, Part II (PART 2 ed., Vol. 8013 LNCS, pp. 417-423). (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics); Vol. 8013 LNCS, No. PART 2). Springer Verlag. https://doi.org/10.1007/978-3-642-39241-2_46

Exploring the need for, and feasibility of, a web-based self-management resource for teenage and young adult cancer survivors in the UK. / Moody, Louise ; Turner, Andy; Osmond, Jane et al.
Design, User Experience, and Usability. Health, Learning, Playing, Cultural, and Cross-Cultural User Experience: Second International Conference, DUXU 2013, Held as Part of HCI International 2013, Las Vegas, NV, USA, July 21-26, 2013, Proceedings, Part II. Vol. 8013 LNCS PART 2. ed. Berlin: Springer Verlag, 2013. p. 417-423 (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics); Vol. 8013 LNCS, No. PART 2).

Research output: Chapter in Book/Report/Conference proceeding › Conference proceeding › peer-review

Moody, L , Turner, A, Osmond, J, Kosmala-Anderson, J, Hooker, L & Batehup, L 2013, Exploring the need for, and feasibility of, a web-based self-management resource for teenage and young adult cancer survivors in the UK. in Design, User Experience, and Usability. Health, Learning, Playing, Cultural, and Cross-Cultural User Experience: Second International Conference, DUXU 2013, Held as Part of HCI International 2013, Las Vegas, NV, USA, July 21-26, 2013, Proceedings, Part II. PART 2 edn, vol. 8013 LNCS, Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics), no. PART 2, vol. 8013 LNCS, Springer Verlag, Berlin, pp. 417-423, 2nd International Conference on Design, User Experience, and Usability: Health, Learning, Playing, Cultural, and Cross-Cultural User Experience, DUXU 2013, Held as Part of 15th International Conference on Human-Computer Interaction, HCI Int. 2013, Las Vegas, Nevada, United States, 21/07/13. https://doi.org/10.1007/978-3-642-39241-2_46

Moody L , Turner A, Osmond J, Kosmala-Anderson J, Hooker L, Batehup L. Exploring the need for, and feasibility of, a web-based self-management resource for teenage and young adult cancer survivors in the UK. In Design, User Experience, and Usability. Health, Learning, Playing, Cultural, and Cross-Cultural User Experience: Second International Conference, DUXU 2013, Held as Part of HCI International 2013, Las Vegas, NV, USA, July 21-26, 2013, Proceedings, Part II. PART 2 ed. Vol. 8013 LNCS. Berlin: Springer Verlag. 2013. p. 417-423. (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics); PART 2). doi: 10.1007/978-3-642-39241-2_46

Moody, Louise ; Turner, Andy ; Osmond, Jane et al. / Exploring the need for, and feasibility of, a web-based self-management resource for teenage and young adult cancer survivors in the UK. Design, User Experience, and Usability. Health, Learning, Playing, Cultural, and Cross-Cultural User Experience: Second International Conference, DUXU 2013, Held as Part of HCI International 2013, Las Vegas, NV, USA, July 21-26, 2013, Proceedings, Part II. Vol. 8013 LNCS PART 2. ed. Berlin : Springer Verlag, 2013. pp. 417-423 (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics); PART 2).

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Exploring the need for, and feasibility of, a web-based self-management resource for teenage and young adult cancer survivors in the UK

Abstract

Publication series

Conference

UN SDGs

Keywords

ASJC Scopus subject areas

Access to Document

Fingerprint

Cite this