Exploring the need for, and feasibility of, a web-based self-management resource for teenage and young adult cancer survivors in the UK

Louise Moody, Andy Turner, Jane Osmond, Jo Kosmala-Anderson, Louise Hooker, Lynn Batehup

Research output: Chapter in Book/Report/Conference proceedingConference proceeding

1 Citation (Scopus)

Abstract

The growth in social networking sites and online forums make the internet a potential platform to be considered for the provision of self-management and e-learning support to young people following cancer treatment. However, the feasibility and potential barriers to this as a post treatment option should be considered. A mixed methods approach was adopted that included an online survey, focus groups and interviews with cancer survivors, their parents, and information technology, clinical and social work professionals to consider the potential of a web-based self-management resource. Barriers were identified to the delivery of care using this method. Developing such a self-management system requires close working between IT and clinical staff, alongside patient representation and usability expertise. As computer access and use amongst this group is commonplace, there is an expectation that self-management needs will be met at least partially in this way in the future.

Original languageEnglish
Title of host publicationDesign, User Experience, and Usability. Health, Learning, Playing, Cultural, and Cross-Cultural User Experience
Subtitle of host publicationSecond International Conference, DUXU 2013, Held as Part of HCI International 2013, Las Vegas, NV, USA, July 21-26, 2013, Proceedings, Part II
Place of PublicationBerlin
PublisherSpringer Verlag
Pages417-423
Number of pages7
Volume8013 LNCS
EditionPART 2
ISBN (Electronic)978-3-642-39241-2
ISBN (Print)978-3-642-39240-5
DOIs
Publication statusPublished - 2013
Event2nd International Conference on Design, User Experience, and Usability: Health, Learning, Playing, Cultural, and Cross-Cultural User Experience, DUXU 2013, Held as Part of 15th International Conference on Human-Computer Interaction, HCI Int. 2013 - Las Vegas, NV, United States
Duration: 21 Jul 201326 Jul 2013

Publication series

NameLecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)
NumberPART 2
Volume8013 LNCS
ISSN (Print)03029743
ISSN (Electronic)16113349

Conference

Conference2nd International Conference on Design, User Experience, and Usability: Health, Learning, Playing, Cultural, and Cross-Cultural User Experience, DUXU 2013, Held as Part of 15th International Conference on Human-Computer Interaction, HCI Int. 2013
CountryUnited States
CityLas Vegas, NV
Period21/07/1326/07/13

Keywords

  • online support
  • Web-based self-management
  • young cancer survivors

ASJC Scopus subject areas

  • Computer Science(all)
  • Theoretical Computer Science

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  • Cite this

    Moody, L., Turner, A., Osmond, J., Kosmala-Anderson, J., Hooker, L., & Batehup, L. (2013). Exploring the need for, and feasibility of, a web-based self-management resource for teenage and young adult cancer survivors in the UK. In Design, User Experience, and Usability. Health, Learning, Playing, Cultural, and Cross-Cultural User Experience: Second International Conference, DUXU 2013, Held as Part of HCI International 2013, Las Vegas, NV, USA, July 21-26, 2013, Proceedings, Part II (PART 2 ed., Vol. 8013 LNCS, pp. 417-423). (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics); Vol. 8013 LNCS, No. PART 2). Berlin: Springer Verlag. https://doi.org/10.1007/978-3-642-39241-2_46