TY - GEN
T1 - Exploring the need for, and feasibility of, a web-based self-management resource for teenage and young adult cancer survivors in the UK
AU - Moody, Louise
AU - Turner, Andy
AU - Osmond, Jane
AU - Kosmala-Anderson, Jo
AU - Hooker, Louise
AU - Batehup, Lynn
PY - 2013
Y1 - 2013
N2 - The growth in social networking sites and online forums make the internet a potential platform to be considered for the provision of self-management and e-learning support to young people following cancer treatment. However, the feasibility and potential barriers to this as a post treatment option should be considered. A mixed methods approach was adopted that included an online survey, focus groups and interviews with cancer survivors, their parents, and information technology, clinical and social work professionals to consider the potential of a web-based self-management resource. Barriers were identified to the delivery of care using this method. Developing such a self-management system requires close working between IT and clinical staff, alongside patient representation and usability expertise. As computer access and use amongst this group is commonplace, there is an expectation that self-management needs will be met at least partially in this way in the future.
AB - The growth in social networking sites and online forums make the internet a potential platform to be considered for the provision of self-management and e-learning support to young people following cancer treatment. However, the feasibility and potential barriers to this as a post treatment option should be considered. A mixed methods approach was adopted that included an online survey, focus groups and interviews with cancer survivors, their parents, and information technology, clinical and social work professionals to consider the potential of a web-based self-management resource. Barriers were identified to the delivery of care using this method. Developing such a self-management system requires close working between IT and clinical staff, alongside patient representation and usability expertise. As computer access and use amongst this group is commonplace, there is an expectation that self-management needs will be met at least partially in this way in the future.
KW - online support
KW - Web-based self-management
KW - young cancer survivors
U2 - 10.1007/978-3-642-39241-2_46
DO - 10.1007/978-3-642-39241-2_46
M3 - Conference proceeding
AN - SCOPUS:84880733984
SN - 978-3-642-39240-5
VL - 8013 LNCS
T3 - Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)
SP - 417
EP - 423
BT - Design, User Experience, and Usability. Health, Learning, Playing, Cultural, and Cross-Cultural User Experience
PB - Springer Verlag
CY - Berlin
T2 - 2nd International Conference on Design, User Experience, and Usability: Health, Learning, Playing, Cultural, and Cross-Cultural User Experience, DUXU 2013, Held as Part of 15th International Conference on Human-Computer Interaction, HCI Int. 2013
Y2 - 21 July 2013 through 26 July 2013
ER -