Experiences and Needs of Children Who Have a Parent with Young Onset Dementia: A Meta-ethnographic Review

Courtney Poole, Tom Patterson

Research output: Contribution to journalReview articlepeer-review

5 Citations (Scopus)
119 Downloads (Pure)


Objectives: The aim of the present review was to critically evaluate empirical evidence regarding the needs and experiences of children who have a parent with young onset dementia (YOD). Methods: A systematic search of five databases was carried out and the resulting 16 studies were reviewed using a meta-ethnographic approach. Results: Three main themes arose from the data: ‘Dementia Impact”, which describes how the child experiences the deterioration in their parent and changes to relationships; “Psychological Impact”, comprising the child’s private emotional experiences and the psychological consequences of changes in roles; and “Practical Impact”, detailing the ways in which children adapt their lives in response to parental YOD, and children’s needs for support. Conclusions: These themes synthesize the existing literature and produce a line of argument explaining the experience of children whose parents have YOD. Clinical Implications: Information and policies regarding YOD should take account of the experiences of patients’ children and should include targeted support for children of parents with YOD.

Original languageEnglish
Pages (from-to)750-762
Number of pages13
JournalClinical Gerontologist
Issue number4
Early online date4 Jun 2020
Publication statusPublished - 8 Aug 2022

Bibliographical note

This is an Accepted Manuscript of an article published by Taylor & Francis in Clinical Gerontologist on 04/06/2020, available online: http://www.tandfonline.com/10.1080/07317115.2020.1765933

Copyright © and Moral Rights are retained by the author(s) and/ or other copyright owners. A copy can be downloaded for personal non-commercial research or study, without prior permission or charge. This item cannot be reproduced or quoted extensively from without first obtaining permission in writing from the copyright holder(s). The content must not be changed in any way or sold commercially in any format or medium without the formal permission of the copyright holders.


  • Young onset dementia
  • children
  • needs
  • parents
  • working age dementia

ASJC Scopus subject areas

  • Social Psychology
  • Health(social science)
  • Clinical Psychology
  • Gerontology
  • Geriatrics and Gerontology


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