Empowerment and advocacy: reflections on action research with Bangladeshi and Pakistani families who have children with severe disabilities

Qulsom Fazil, Louise M. Wallace, Gurnam Singh, Zoebia Ali, Paul Bywaters

    Research output: Contribution to journalArticle

    19 Citations (Scopus)

    Abstract

    The concepts of empowerment and advocacy, and how they impinge on power relationships for service providers working with black and Asian communities, are explored through the findings of a 20-month project carried out between 2000 and 2001 with 19 Pakistani and Bangladeshi families who have children with severe disabilities in Birmingham. This action research project evaluated an advocacy project designed to improve the quality of life for Pakistani and Bangladeshi families with at least one child with severe disabilities. The objectives included improving access to resources, services, information and support in ways which were non-stigmatising, and which were sensitive to the particular needs of the children and their carers. The present paper discusses four main themes: (1) advocacy and empowerment in practice; (2) issues of the efficacy of advocacy and of consultation within advocacy; (3) individual empowerment versus the families’ needs; and (4) cultural and gender issues which emerged from the analysis of the study. The authors identify features of empowerment which must be addressed in advocacy services which are sensitive to ethnic differences. These issues must be addressed if services are to reap their potential to make a positive impact on the lives of the most vulnerable and powerless members of the community.
    Original languageEnglish
    Pages (from-to)389-397
    JournalHealth & Social Care in the Community
    Volume12
    Issue number5
    DOIs
    Publication statusPublished - Sep 2004

    Fingerprint

    severe disability
    Health Services Research
    Disabled Children
    action research
    empowerment
    information service
    Information Services
    service provider
    community
    Interpersonal Relations
    quality of life
    research project
    Caregivers
    Referral and Consultation
    Quality of Life
    Power (Psychology)
    gender
    resources

    Bibliographical note

    This paper is not available on the repository

    Keywords

    • advocacy
    • Bangladeshi
    • disability
    • empowerment
    • ethnicity
    • Pakistani
    • South Asian
    • user consultation

    Cite this

    Empowerment and advocacy: reflections on action research with Bangladeshi and Pakistani families who have children with severe disabilities. / Fazil, Qulsom; Wallace, Louise M.; Singh, Gurnam; Ali, Zoebia; Bywaters, Paul.

    In: Health & Social Care in the Community, Vol. 12, No. 5, 09.2004, p. 389-397.

    Research output: Contribution to journalArticle

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