Barriers to access: factors limiting full participation of children with albinism at school in northern Malawi: Part 1

Patricia Lund; B. Massah; F. Mchekeni; P. Lynch

Barriers to access: factors limiting full participation of children with albinism at school in northern Malawi: Part 1

Patricia Lund, B. Massah, F. Mchekeni, P. Lynch

School of Life Sciences

Research output: Book/Report › Other report

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Abstract

Children with the inherited condition albinism in Africa lack pigment in their hair, eyes and skin and are an especially vulnerable group: they are ‘white’ in a black community, visually impaired, highly susceptible to sun-induced skin damage and suffer social stigma and rejection. The main aim of this study was to identify factors influencing access to and participation in education for young people with albinism in five rural villages in northern Malawi. An additional aim was to document local community beliefs about albinism which may impact on their educational opportunities and environment. This study, conducted in partnership with the Malawian Ministry of Education, the charities Malawi Council for the Handicapped (MACOHA) and The Albino Association of Malawi (TAAM), will have a high social impact by informing educational policy of this vulnerable group of children in Malawi.

Original language	English
Place of Publication	Coventry
Publisher	Coventry University
Publication status	Published - 2015

Bibliographical note

This research was funded by a British Academy Small Research Grant to Coventry University.

Keywords

Malawi
albinism
education

Access to Document

Field report on education of children in Malawi September 2012Final published version, 630 KB

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Cite this

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title = "Barriers to access: factors limiting full participation of children with albinism at school in northern Malawi: Part 1",

abstract = "Children with the inherited condition albinism in Africa lack pigment in their hair, eyes and skin and are an especially vulnerable group: they are ‘white’ in a black community, visually impaired, highly susceptible to sun-induced skin damage and suffer social stigma and rejection. The main aim of this study was to identify factors influencing access to and participation in education for young people with albinism in five rural villages in northern Malawi. An additional aim was to document local community beliefs about albinism which may impact on their educational opportunities and environment. This study, conducted in partnership with the Malawian Ministry of Education, the charities Malawi Council for the Handicapped (MACOHA) and The Albino Association of Malawi (TAAM), will have a high social impact by informing educational policy of this vulnerable group of children in Malawi.",

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AU - Mchekeni, F.

AU - Lynch, P.

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AB - Children with the inherited condition albinism in Africa lack pigment in their hair, eyes and skin and are an especially vulnerable group: they are ‘white’ in a black community, visually impaired, highly susceptible to sun-induced skin damage and suffer social stigma and rejection. The main aim of this study was to identify factors influencing access to and participation in education for young people with albinism in five rural villages in northern Malawi. An additional aim was to document local community beliefs about albinism which may impact on their educational opportunities and environment. This study, conducted in partnership with the Malawian Ministry of Education, the charities Malawi Council for the Handicapped (MACOHA) and The Albino Association of Malawi (TAAM), will have a high social impact by informing educational policy of this vulnerable group of children in Malawi.

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BT - Barriers to access: factors limiting full participation of children with albinism at school in northern Malawi: Part 1

PB - Coventry University

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