Attitudes towards disability amongst Pakistani and Bangladeshi parents of disabled children in the UK: considerations for service providers and the disability movement

Paul Bywaters, Zoebia Ali, Qulsom Fazil, Louise M. Wallace, Gurnam Singh

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    42 Citations (Scopus)

    Abstract

    It has sometimes been assumed that religiously based explanations for and attitudes to having a disabled child have led to the low uptake of health and social services by ethnic minority families in the UK. A series of semi-structured interviews were held between 1999 and 2001 with 19 Pakistani and Bangladeshi families with a disabled child as part of an evaluation of an advocacy service. The families’ understandings of the causes of their child's impairment, whether they felt shame and experienced stigma, and whether these factors influenced service uptake and their expectations of their child's future are reported. While religious beliefs did inform the ways in which some families conceptualised their experience, the families’ attitudes were complex and varied. There was little evidence that religious beliefs and associated attitudes rather than institutional racism had resulted in the low levels of service provision which the families experienced prior to the advocacy service. There was also no evidence that the families’ attitudes had been informed by the disability movement. The implications for service providers and the movement are considered.
    Original languageEnglish
    Pages (from-to)502-509
    JournalHealth and Social Care in the Community
    Volume11
    Issue number6
    DOIs
    Publication statusPublished - Nov 2003

    Fingerprint

    Disabled Children
    service provider
    parents
    Parents
    disability
    Religion
    Racism
    Shame
    shame
    Social Work
    national minority
    mobile social services
    racism
    Health Services
    evidence
    health service
    Interviews
    cause
    interview
    evaluation

    Bibliographical note

    This paper is not available on the repository

    Keywords

    • attitudes
    • Bangladeshi
    • children
    • disability
    • Pakistani

    Cite this

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    abstract = "It has sometimes been assumed that religiously based explanations for and attitudes to having a disabled child have led to the low uptake of health and social services by ethnic minority families in the UK. A series of semi-structured interviews were held between 1999 and 2001 with 19 Pakistani and Bangladeshi families with a disabled child as part of an evaluation of an advocacy service. The families’ understandings of the causes of their child's impairment, whether they felt shame and experienced stigma, and whether these factors influenced service uptake and their expectations of their child's future are reported. While religious beliefs did inform the ways in which some families conceptualised their experience, the families’ attitudes were complex and varied. There was little evidence that religious beliefs and associated attitudes rather than institutional racism had resulted in the low levels of service provision which the families experienced prior to the advocacy service. There was also no evidence that the families’ attitudes had been informed by the disability movement. The implications for service providers and the movement are considered.",
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