Adherence in multiple sclerosis (ADAMS): Classification, relevance, and research needs. A meeting report

C. Heesen, J. Bruce, P. Feys, J. Sastre-Garriga, A. Solari, L. Eliasson, V. Matthews, B. Hausmann, A. Perrin Ross, M Asano, K. Imonen-Charalambous, S. Köpke, Wendy Clyne

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    Abstract

    Background: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied. Methods: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session. Results: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions. Conclusions: A focus on patient preferences as well as a non-judgemental discussion on adherence issues with patients should be at the core of adherence work.
    Original languageEnglish
    Pages (from-to)1795-1798
    JournalMultiple Sclerosis Journal
    Volume20
    Issue number13
    Early online date22 Apr 2014
    DOIs
    Publication statusPublished - 1 Nov 2014

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    Keywords

    • Disease-modifying therapies
    • multiple sclerosis
    • rehabilitation
    • adherence

    Cite this

    Heesen, C., Bruce, J., Feys, P., Sastre-Garriga, J., Solari, A., Eliasson, L., ... Clyne, W. (2014). Adherence in multiple sclerosis (ADAMS): Classification, relevance, and research needs. A meeting report. Multiple Sclerosis Journal, 20(13), 1795-1798. https://doi.org/10.1177/1352458514531348