Abstract
Original language | English |
---|---|
Pages (from-to) | 1795-1798 |
Journal | Multiple Sclerosis Journal |
Volume | 20 |
Issue number | 13 |
Early online date | 22 Apr 2014 |
DOIs | |
Publication status | Published - 1 Nov 2014 |
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Bibliographical note
There is no full text available on the repository at this time.Keywords
- Disease-modifying therapies
- multiple sclerosis
- rehabilitation
- adherence
Cite this
Adherence in multiple sclerosis (ADAMS): Classification, relevance, and research needs. A meeting report. / Heesen, C.; Bruce, J.; Feys, P.; Sastre-Garriga, J.; Solari, A.; Eliasson, L.; Matthews, V.; Hausmann, B.; Perrin Ross, A.; Asano, M; Imonen-Charalambous, K.; Köpke, S.; Clyne, Wendy.
In: Multiple Sclerosis Journal, Vol. 20, No. 13, 01.11.2014, p. 1795-1798.Research output: Contribution to journal › Article
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TY - JOUR
T1 - Adherence in multiple sclerosis (ADAMS): Classification, relevance, and research needs. A meeting report
AU - Heesen, C.
AU - Bruce, J.
AU - Feys, P.
AU - Sastre-Garriga, J.
AU - Solari, A.
AU - Eliasson, L.
AU - Matthews, V.
AU - Hausmann, B.
AU - Perrin Ross, A.
AU - Asano, M
AU - Imonen-Charalambous, K.
AU - Köpke, S.
AU - Clyne, Wendy
N1 - There is no full text available on the repository at this time.
PY - 2014/11/1
Y1 - 2014/11/1
N2 - Background: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied. Methods: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session. Results: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions. Conclusions: A focus on patient preferences as well as a non-judgemental discussion on adherence issues with patients should be at the core of adherence work.
AB - Background: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied. Methods: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session. Results: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions. Conclusions: A focus on patient preferences as well as a non-judgemental discussion on adherence issues with patients should be at the core of adherence work.
KW - Disease-modifying therapies
KW - multiple sclerosis
KW - rehabilitation
KW - adherence
U2 - 10.1177/1352458514531348
DO - 10.1177/1352458514531348
M3 - Article
VL - 20
SP - 1795
EP - 1798
JO - Multiple Sclerosis
JF - Multiple Sclerosis
SN - 1352-4585
IS - 13
ER -