Adapting Safety Plans for Autistic Adults with Involvement from the Autism Community

  • Jane Goodwin
  • , Isabel Gordon
  • , Sally O'Keeffe
  • , Scarlett Carling
  • , Anya Berresford
  • , Nawaraj Bhattarai
  • , Phil Heslop
  • , Emma Nielsen
  • , Rory C. O'Connor
  • , Emmanuel Ogundimu
  • , Mirabel Pelton
  • , Sheena E. Ramsay
  • , Jacqui Rodgers
  • , Ellen Townsend
  • , Luke Vale
  • , Colin Wilson
  • , Sarah Cassidy

    Research output: Contribution to journalArticlepeer-review

    15 Downloads (Pure)

    Abstract

    Background: Autistic adults are at greater risk of self-harm and suicide than the general population. One promising intervention in the general population is safety planning. We aimed to seek advice from autistic adults and others in the autism community on how to adapt safety plans for autistic adults.
    Methods: We conducted focus groups with autistic adults (n = 15), family members (n = 5), and service providers (n = 10), about their views of the Autism Adapted Safety Plan (AASP). We also conducted interviews about the acceptability of the AASP with autistic adults who had developed an AASP (n = 8) and with service providers who had supported them (n = 8). We analyzed the focus group and interview transcripts using thematic analysis.
    Results: Theme 1 highlights conditions needed to make the process of creating the AASP acceptable for autistic adults. This included creating the AASP with someone they could trust and at the right place and time, when they were not in distress or in crisis. Theme 2 describes how safety planning needed to be a creative, flexible, and iterative process. Autistic adults may need help in expressing their emotions and identifying coping strategies, which can be supported through visual resources and suggestions from the service provider. To ensure that the AASP is accessible in times of crisis, it needs to meet the autistic adults' preferences in terms of formatting and how it is stored (i.e., hard copy or electronic).
    Conclusions: The AASP is a potentially valuable intervention for autistic adults, provided that the process of creating it is flexible and sensitive to individual needs. Further testing of the AASP to assess its clinical effectiveness in reducing suicidal behavior could provide a life-saving intervention for autistic adults.
    Original languageEnglish
    Pages (from-to)293-302
    Number of pages10
    JournalAutism in Adulthood
    Volume7
    Issue number3
    Early online date1 Apr 2024
    DOIs
    Publication statusPublished - 1 Jun 2025

    Bibliographical note

    Publisher Copyright:
    © 2024 Mary Ann Liebert Inc.. All rights reserved.

    Funding

    This study is funded by the National Institute for Health and Care Research (NIHR) Public Health Research Programme (NIHR129196). S.O.K. is funded by the NIHR Applied Research Collaboration North East and North Cumbria (NIHR200173).

    FundersFunder number
    National Institute for Health and Care ResearchNIHR129196, NIHR200173

      UN SDGs

      This output contributes to the following UN Sustainable Development Goals (SDGs)

      1. SDG 3 - Good Health and Well-being
        SDG 3 Good Health and Well-being

      Keywords

      • autism
      • qualitative research
      • safety plan
      • self-harm
      • suicide
      • thematic analysis

      ASJC Scopus subject areas

      • Clinical Neurology
      • Neurology
      • Psychiatry and Mental health
      • Developmental and Educational Psychology
      • Cognitive Neuroscience

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