Acceptable care? Illness constructions, healthworlds, and accessible chronic treatment in South Africa

Jana Fried, B. Harris, J. Eyles, M. Moshabela

Research output: Contribution to journalArticle

11 Citations (Scopus)
29 Downloads (Pure)

Abstract

Achieving equitable access to health care is an important policy goal, with access influenced by affordability, availability, and acceptability of specific services. We explore patient narratives from a 5-year program of research on health care access to examine relationships between social constructions of illness and the acceptability of health services in the context of tuberculosis treatment and antiretroviral therapy in South Africa. Acceptability of services seems particularly important to the meanings patients attach to illness and care, whereas - conversely - these constructions appear to influence what constitutes acceptability and hence affect access to care. We highlight the underestimated role of individually, socially, and politically constructed healthworlds; traditional and biomedical beliefs; and social support networks. Suggested policy implications for improving acceptability and hence overall health care access include abandoning patronizing approaches to care and refocusing from treating "disease" to responding to "illness" by acknowledging and incorporating patients' healthworlds in patient-provider interactions.
Original languageEnglish
Pages (from-to)622-635
JournalQualitative Health Research
Volume25
Issue number5
DOIs
Publication statusPublished - 2015

Bibliographical note

This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 3.0 License (http://www.creativecommons.org/licenses/by-nc/3.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (http://www.uk.sagepub.com/aboutus/openaccess.htm).

Funder

Global Health Research Initiative (GHRI), a collaborative research funding partnership of the Canadian Institutes of Health Research, the Canadian International Development Agency, Health Canada, the International Development Research Centre, and the Public Health Agency of Canada

Keywords

  • Africa
  • South
  • health care
  • access to
  • users' experiences
  • HIV/AIDS
  • illness and disease
  • chronic
  • infectious
  • social construction
  • interviews
  • semistructured
  • relationships
  • patient-provider
  • research
  • qualitative
  • social constructionism
  • tuberculosis (TB)

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